Birth Defects & Genetic Diseases

Emily’s Entourage accelerates research and drug development for nonsense mutations of Cystic Fibrosis. By providing critical leadership and coordination, Emily’s Entourage drives high-impact research, cultivates multi-stakeholder collaboration, and facilitates information exchange to speed breakthroughs. Our goal is singular: to expedite life-saving treatments and a cure for those with nonsense mutations of CF who are waiting with bated and fading breath.

Easterseals North Texas is a 501(c)(3) non-profit organization serving children and adults with disabilities and other special needs locally since 1939. We are an affiliate of the national organization, Easter Seals, Inc. Creating opportunities that advance the independence of individuals with disabilities and other special needs. As a nonprofit organization, Easterseals North Texas is always ready to provide expert help, hope and answers. It’s who we are, and what we have been doing for 75 years in North Texas. We have a longstanding commitment of providing unique programs and services for individuals with a wide variety of disabilities, including Autism Spectrum Disorder, Alzheimer’s disease, Down syndrome, Cerebral Palsy, Mental and Developmental Delays. Our services evolve with the needs of North Texans, and are provided in our centers in Fort Worth and Carrollton. ESNT does not exclude, deny benefits to, or otherwise discriminate against any individual or groups.

TEMPUS UNLIMITED EXISTS TO PROVIDE A CONTINUUM OF COMMUNITY BASED SERVICES THAT SUPPORTS THE EFFORTS OF CHILDREN AND ADULTS WITH DEVELOPMENTAL DISABILITIES TO LIVE AS INDEPENDENTLY AS POSSIBLE IN THE LEAST RESTRICTIVE ENVIRONMENT. THROUGH PERSONAL INVOLVEMENT, INDIVIDUAL DECISION-MAKING IS SUPPORTED AND ENCOURAGED TO ENHANCE THE CONTROL OF A PERSON OVER THEIR OWN LIVES AND FOSTER SELF-SUFFICIENCY. THE GENERAL AREAS OF SERVICE INCLUDE, BUT ARE NOT LIMITED TO, PHYSICAL, SPEECH, AND OCCUPATIONAL THERAPY; EDUCATIONAL, DAY CARE, NURSING, RECREATIONAL, AND SOCIAL SERVICES; PARENT AND SIBLING GROUPS; SKILLS TRAINING, PERSONAL CARE ATTENDANT AND SUPPORTIVE SERVICES. THE AGENCY THROUGH ITS PROGRAMS AND SERVICES ENCOURAGES THE INCLUSION OF PEOPLE WITH DEVELOPMENTAL DISABILITIES INTO THE MAINSTREAM OF SOCIETY INCLUDING SOCIAL, RECREATIONAL, FAMILY AND WORK ACTIVITIES.

SEE SCHEDULE OADAPT COMMUNITY NETWORK ( THE "AGENCY" ) IS A NOT-FOR-PROFIT ORGANIZATION, FORMED UNDER THE NOT-FOR-PROFIT CORPORATION LAW OF THE STATE OF NEW YORK, FOUNDED IN 1946 BY PARENTS OF CHILDREN WITH DISABILITIES. THE MISSION OF THE AGENCY IS TO CREATE OPPORTUNITIES FOR PEOPLE WITH DISABILITIES TO LEAD INDEPENDENT AND FULFILLING LIVES. THE MISSION OF THE AGENCY IS TO EMPOWER PEOPLE THROUGH INNOVATIVE SOLUTIONS, ONE PERSON AT A TIME.CURRENTLY, APPROXIMATELY 20,000 INDIVIDUALS RECEIVE SERVICES ANNUALLY FROM THE AGENCY. THESE SERVICES INCLUDE PRESCHOOL AND SCHOOL-AGE PROGRAMS, RESIDENTIAL PROGRAMS, DAY PROGRAMS, VOCATIONAL PROGRAMS AND MEDICAL AND SUPPORT SERVICES.

NEW JERSEY INSTITUTE FOR DISABILITIES, INC. IS DEDICATED TO THE PROVISION OF COMPREHENSIVE, SUPERIOR, MULTI-FACETED PROGRAMS OF SERVICE TO INDIVIDUALS WITH DEVELOPMENTAL AND RELATED DISABILITIES AND THEIR FAMILIES REGARDLESS OF RACE, GENDER, CREED, ECONOMIC STATUS OR AGE.

THE CENTER FOR DISCOVERY OFFERS INDIVIDUALS WITH A RANGE OF DISABILITIES AND MEDICAL FRAILTIES - AND THEIR FAMILIES - INNOVATIVE EDUCATIONAL, CLINICAL, RESIDENTIAL, SOCIAL AND CREATIVE ARTS EXPERIENCES DESIGNED TO ENRICH THEIR LIVES THROUGH PERSONAL ACCOMPLISHMENT.

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AT UPSTATE CEREBRAL PALSY, INC., WE PROVIDE INNOVATIVE PROGRAMS AND SERVICES THAT SUPPORT PEOPLE AND CREATE OPPORTUNITIES TO FULFILL LIFE CHOICES ONE PERSON AT A TIME, THROUGH EVERYDAY MIRACLES. THE ORGANIZATION PROVIDES DIRECT CARE SERVICES AND PROGRAMS FOR INDIVIDUALS WHO ARE PHYSICALLY, DEVELOPMENTALLY OR MENTALLY CHALLENGED. SERVICES PROVIDED INCLUDE PRESCHOOL AND SCHOOL AGE EDUCATION, CLINICAL/MEDICAL DIAGNOSTIC AND TREATMENT, PRIMARY CARE, HOME AND COMMUNITY BASED WAIVER SERVICES, RESIDENCES, MENTAL HEALTH PROGRAMS, ADULT DAY TREATMENT, CRISIS CARE SERVICES, AND DAY CARE.

THE PRIMARY EXEMPT PURPOSE OF THE ORGANIZATION IS TO PROVIDE EDUCATION, DAY TREATMENT, DAY HABILITATION, RESIDENTIAL, RESPITE, COMMUNITY HABILITATION PROGRAMS AND EMPLOYMENT SERVICES FOR PERSONS WITH DISABILITIES.

ACCESSCNY OFFERS PERSONCENTERED SERVICES THAT EMPOWER INDIVIDUALS OF ALL AGES AND ABILITIES TO REACH THEIR FULL POTENTIAL AS PART OF OUR SHARED COMMUNITY. SERVICES ARE PROVIDED WITH DEDICATION, COMPASSION, INNOVATION, AND COMMITMENT. THE AGENCY SUPPORTS PEOPLE WITH DEVELOPMENTAL DISABILITIES, ACQUIRED BRAIN INJURIES (ABI) AND MENTAL HEALTH ISSUES.

UCP OF CENTRAL FLORIDA EMPOWERS CHILDREN WITH AND WITHOUT DISABILITIES TO ACHIEVE THEIR POTENTIAL BY PROVIDING INDIVIDUALIZED SUPPORT, EDUCATION AND THERAPY IN AN INCLUSIVE ENVIRONMENT.

THE MISSION IS TO A) AFFECT POSITIVELY THE QUALITY OF LIFE OF PERSONS WITH CEREBRAL PALSY, OTHERS WITH SEVERE DISABILITIES AND MULTIPLE SERVICE NEEDS, AND THE FAMILIES OF BOTH AND B) PREVENT CEREBRAL PALSY AND MINIMIZE ITS EFFECTS.

PILLAR CARE CONTINUUM IS DEDICATED TO ENHANCING THE LIVES OF PEOPLE WITH DISABILITIES AND OTHER SPECIAL NEEDS BY SUPPORTING PERSONAL GROWTH, INDEPENDENCE, AND PARTICIPATION IN THE COMMUNITY.

THE MISSION OF LADACIN NETWORK, A NON-PROFIT AGENCY, IS TO PROVIDE A CONTINUUM OF CARE, INCLUDING EDUCATIONAL, THERAPEUTIC, SOCIAL, RESIDENTIAL AND SUPPORT SERVICES TO INFANTS, CHILDREN, AND ADULTS WITH COMPLEX PHYSICAL AND DEVELOPMENTAL DISABILITIES OR DELAYS.

EASTER SEALS PROVIDES EXCEPTIONAL SERVICES TO ENSURE THAT ALL PEOPLE WITH DISABILITIES OR SPECIAL NEEDS AS WELL AS THEIR FAMILIES HAVE EQUAL OPPORTUNITIES TO LIVE, LEARN, WORK AND PLAY IN THEIR COMMUNITIES.

UNIFIED COMMUNITY CONNECTIONS, INC.'S MISSION IS TO SUPPORT INDIVIDUALS WITH DISABILITIES IN ACHEIVING INDEPENDENCE, PRODUCTIVITY, AND THE QUALITY OF LIFE THEY SEEK.

PROVAIL'S MISSION IS TO SUPPORT PEOPLE WITH DISABILITIES TO FULFILL THEIR LIFE CHOICES.

HEMOPHILIA OF GEORGIA EXISTS SO THAT PEOPLE IN GEORGIA AFFECTED BY BLEEDING DISORDERS LIVE AS NORMALLY AND PRODUCTIVELY AS POSSIBLE.

THE MISSION OF UCP OF SACRAMENTO AND NORTHERN CALIFORNIA IS TO PROVIDE PROGRAMS AND SERVICES THAT IMPROVE THE INDEPENDENCE, PRODUCTIVITY, AND QUALITY OF LIFE FOR PEOPLE WITH DEVELOPMENTAL DISABILITIES AND THEIR FAMILIES.

TO PROMOTE THE GENERAL WELFARE OF DEVELOPMENTALLY DISABLED AND/OR HANDICAPPED PERSONS AND THE FRAIL AND ELDERLY AND TO EDUCATE AND INFORM THE PUBLIC REGARDING THEIR NEEDS. THE ORGANIZATION PROVIDES TO CHILDREN AND ADULTS DEVELOPMENTAL TRAINING, THERAPY, EDUCATION, RESIDENTIAL HABILITATION, MEDICAL SERVICES, SUPPORTED LIVING AND OTHER RELATED PROGRAMS AND SERVICES.

SUPPORTING PEOPLE WITH PHYSICAL AND DEVELOPMENTAL DISABILITIES IN CHOOSING AND ACCOMPLISHING SUCCESSIVE INDIVIDUALIZED LIFE GOALS THROUGH PROVIDING A WIDE RANGE OF SERVICES TO PEOPLE OF ALL AGES IN THE GREATER ROCHESTER AREA; INCLUDING OUTPATIENT CLINICAL, DENTAL, RESIDENTIAL, EDUCATIONAL, RECREATIONAL AND PERSONAL SUPPORT SERVICES.

NORTH JERSEY ELKS DEVELOPMENTAL DISABILITIES AGENCY'S MISSION IS TO ADVANCE THE INDEPENDENCE AND TO ENRICH THE QUALITY OF LIFE OF INDIVIDUALS WITH DISABILITIES BY PROVIDING OPPORTUNITIES TO CHALLENGE THEMSELVES TO LEARN AND GROW EMOTIONALLY AND FUNCTIONALLY IN EDUCATIONAL, THERAPEUTIC AND VOCATIONAL ENVIRONMENTS WITHIN AN ATMOSPHERE OF ACCEPTANCE.

EMPOWERING THE PEOPLE WE SERVE TO LIVE THEIR BEST LIVES.

TO PROVIDE SERVICES TO INDIVIDUALS WITH ALL TYPES OF PHYSICAL DISABILITIES, INCLUDING, BUT NOT LIMITED TO, ACQUIRED BRAIN INJURY, INTELLECTUAL AND DEVELOPMENT DISABILITIES, SPINA BIFIDA, SPINAL CORD INJURY, AND CEREBRAL PALSY.

UCP OF CENTRAL ARIZONA PROVIDES COMPREHENSIVE SERVICE TO INDIVIDUALS WITH DISABILITES AND THEIR FAMILIES BY PROVIDING PHYSICAL AND DEVELOPMENTAL SUPPORT AS WELL AS EDUCATIONAL GROWTH WHICH IS THE FOUNDATION FOR INDEPENDENT LIVING.

TO PROVIDE SERVICES TO PEOPLE WITH DISABILITIES

ORANGE COUNTY CEREBRAL PALSY ASSOCIATION, INC.'S MISSION IS TO PROVIDE INDIVIDUALIZED AND FAMILY-CENTERED SUPPORTS TO PROMOTE LIVES FULL OF OPPORTUNITIES FOR PEOPLE WITH CHALLENGES.

CELEBRATING ALL ABILITIES AND UNLOCKING POTENTIAL.

THE MISSION OF UNLIMITED POSSIBILITIES IS TO CREATE A LIMITLESS FUTURE FOR CHILDREN AND FAMILIES WITH DISABILITIES.

TO ADVANCE THE INDEPENDENCE, PRODUCTIVITY, AND FULL CITIZENSHIP OF INDIVIDUALS WITH DISABILITIES

The mission of United Cerebral Palsy of Rhode Island is to "advance the independence, productivity and full citizenship of individuals with cerebral palsy and other disabilities." This mission is accomplished in part through the provision of highly individualized supports designed to enhance each individuals abilities, affording them the opportunity to fully participate in the community of their choice.

HELPING PEOPLE LIVE INDEPENDENTLY EVERY DAY WITH QUALITY CARE.

WE SUPPORT LIFE WITHOUT LIMITS BY CREATING SYSTEMS THAT ARE PROGRESSIVE, ACCESSIBLE, DEPENDABLE, REFLECT QUALITY OUTCOMES AND PROMOTE INDEPENDENCE. THE ORGANIZATION PROVIDES CRUCIAL SERVICES TO OVER 2,000 INDIVIDUALS AND THEIR FAMILIES EACH YEAR AND PROVIDES MORE THAN 281,000 SERVICE HOURS

TO ENCOURAGE THE INCREASED INDEPENDENCE OF, AND TO PROMOTE AND SUPPORT RESPONSIBLE CHOICE MAKING BY PEOPLE WITH INTELLECTUAL DISABILITIES, MENTAL ILLNESS, AND AUTISM IN THE MID COAST AREA.

TO ADVANCE THE INDEPENDENCE FOR CHILDREN AND ADULTS WITH A SPECTRUM OF ABILITIES AND DISABILITIES. SERVICES IN ESCAMBIA AND SANTA ROSA COUNTIES INCLUDE SITES FOR ADULT AND CHILDREN'S DAY PROGRAMS AND GROUP HOMES.

TO ADVANCE THE INTERESTS OF ALL INDIVIDUALS WITH WILLIAMS SYNDROME THROUGHOUT THEIR LIFESPAN BY PROVIDING PROGRAMMING AND RESOURCES, SUPPORTING RESEARCH, PROMOTING PARTNERSHIPS AND CONNECTIONS, AND ENSURING THAT THE INFRASTRUCTURE OF THE ORGANIZATION HAS THE CAPACITY TO LEAD OUR COMMUNITY TOWARD ITS GOALS.

TO ENHANCE THE ABILITIES AND SUPPORT THE INDEPENDENCE OF PEOPLE WITH CEREBRAL PALSY AND OTHER DISABILITIES THROUGHOUT THEIR LIVES. THIS IS DONE BY PROVIDING THE HIGHEST QUALITY OF SERVICES TO INDIVIDUALS WITH DISABILITIES AND THEIR FAMILIES BY EDUCATING THE COMMUNITY ABOUT PHYSICAL DISABILITIES, INFORMING THE PUBLIC ABOUT THE ABILITIES AND RIGHTS OF PEOPLE WITH CEREBRAL PALSY AND OTHER DISABILITIES, PROMOTING SELF-DETERMINATION AND BY ENHANCING THE DEVELOPMENTAL GROWTH OF CHILDREN AND INDEPENDENCE OF ADULTS WITH DISABILITIES IN THE COMMUNITY.

TO PROVIDE A COMPREHENSIVE RANGE OF SERVICES TO DEVELOPMENTALLY OR NEUROLOGICALLY IMPAIRED PERSONS OF ALL AGES.

TO INCREASE KNOWLEDGE OF AND PROMOTE RESEARCH IN INBORN ERRORS OF METABOLISM IN HUMANS, AND TO STIMULATE INTERACTIONS BETWEEN CLINICIANS AND INVESTIGATORS IN INBORN ERRORS OF METABOLISM. TO SEEK TO FOSTER TRAINING AND MAINTENANCE OF A CORE OF QUALIFIED PHYSICIANS, FELLOWS, NUTRITIONISTS, NURSES AND LABORATORY STAFF.

CONSTRUCTIVE PARTNERSHIPS UNLIMITED PROMOTES OPPORTUNITIES FOR PEOPLE WITH INTELLECTUAL DISABILITIES TO ACHIEVE FULFILLING LIVES.

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UNITED CEREBRAL PALSY ASSOCIATION OF MICHIGAN, INC. CONNECTS PEOPLE WITH DISABILITIES TO THE OPPORTUNITIES AND RESOURCES NEEDED TO LIVE PRODUCTIVE AND INDEPENDENT LIVES.

PROVIDING EDUCATION AND SUPPORT SERVICES FOR INDIVIDUALS AND FAMILIES WITH BLEEDING DISORDERS AND EMPOWERING THEM TO LIVE HEALTHIER AND MORE SELF- SUFFICIENT LIVES.

PRISMS provides a range of services for persons with SMS telephone support, database of registered families, newsletters, informational packets for caregivers and medical professionals. P.R.I.S.M.S., Inc. engages individuals with medical and scientific expertise to serve on its Professional Advisory Board, conducts an international conference.

Provided assistance to persons with developmental and physical disabilities and their family members.

THE MISSION OF UNITED CEREBRAL PALSY IS TO EMPOWER CHILDREN AND ADULTS WITH DISABILITIES TO ADVANCE THEIR INDEPENDENCE, PRODUCTIVITY AND INCLUSION IN THE COMMUNITY.

UNITED CEREBRAL PALSY OPERATING AS STEPPING STONES HAS ADOPTED THE FOLLOWING MISSION: STEPPING STONES' MISSION IS TO INCREASE INDEPENDENCE, IMPROVE LIVES AND PROMOTE INCLUSION FOR CHILDREN AND ADULTS WITH DISABILITIES.

THE MISSION OF THE UCP MEMORIAL FOUNDATION IS TO SUPPORT THE OPERATIONS OF UCP OF CENTRAL FLORIDA, A NON-PROFIT 501(C)(3) ORGANIZATION, THAT PROVIDES SUPPORT, EDUCATION AND THERAPY SERVICES FOR CHILDREN WITH AND WITHOUT DISABILTIES.