Specifically Named Diseases

The mission of the American Diabetes Association is to prevent and cure diabetes and to improve the lives of all people affected by diabetes.

EBRP is dedicated to funding research aimed at treating and curing Epidermolysis Bullosa, a group of life-threatening skin disorders.

THE SAN DIEGO LGBT COMMUNITY CENTER ENHANCES AND SUSTAINS THE HEALTH & WELL-BEING OF THE LESBIAN, GAY, BISEXUAL, QUEER, TRANSGENDER, NONBINARY, IMMIGRANT, AND HIV COMMUNITIES TO THE BETTERMENT OF OUR ENTIRE SAN DIEGO REGION.

TO SUPPORT THE DEVELOPMENT OF NEW DRUGS TO TREAT CHARCOT-MARIE-TOOTH DISEASE (CMT), TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE WITH CMT AND ULTIMATELY, TO FIND A CURE.

THE ORGANIZATIONS MISSION IS TO PROVIDE HOSPITALS AND HEALTH CARE ORGANIZATIONS LOCATED WITHIN THE MICHIGAN COUNTIES OF WAYNE, OAKLAND, MACOMB, ST. CLAIR, SANILAC AND LAPEER WITH FUNDS FOR THE PURCHASE OF EQUIPMENT FOR DIAGNOSIS AND TREATMENT OF TUBERCULOSIS AND OTHER RESPIRATORY DISEASES.

THE ORGANIZATION'S MISSION, SINCE INCEPTION, IS TO PROVIDE COMPREHENSIVE AND HUMANE CARE TO PATIENTS WITH MULTIPLE SCLEROSIS AND THEIR FAMILIES. THE OVERALL GOAL OF CARE IS MAINTENANCE OF THE PATIENT'S HIGHEST LEVEL OF INDEPENDENCE IN THEIR HOME AND WORK ENVIRONMENT WHILE MAINTAINING SAFETY AND COMFORT. PLEASE REFER TO THE ORGANIZATION'S COMMUNITY BENEFIT STATEMENT INCLUDED WITHIN SCHEDULE O.

TO ADVANCE KNOWLEDGE AND FACILITATE RESEARCH OF THE PATHOGENESIS, DIAGNOSIS AND TREATMENT OF LYME DISEASE AND OTHER TICK-BORNE INFECTIONS.

SEE SCHEDULE O

RAISE FUNDS TO PROMOTE EDUCATION AND AWARENESS; MEET EVER-INCREASING NEEDS OF INDIVIDUALS WITH GAUCHER DISEASE AND THEIR FAMILIES.

PXE INTERNATIONAL INC. INITIATES AND CONDUCTS RESEARCH, EDUCATES CLINICIANS, AND SUPPORTS INDIVIDUALS AFFECTED BY PSEUDOXANTHOMA ELASTICUM (PXE).

PROVIDE SUPPORT AND INFORMATIONAL RESOURCES FOR INDIVIDUALS AFFECTED BY HEMANGIOMAS, PORT WINE STAINS AND OTHER VASCULAR BIRTHMARKS AND TUMORS, AND SPONSORED RELEVANT RESEARCH

THE FUND FOR PUBLIC HEALTH IN NYC IS DEDICATED TO THE WELL-BEING OF ALL NYC RESIDENTS, IMPLEMENTING PROGRAMS IN COLLABORATION WITH THE NYC HEALTH DEPARTMENT, LEVERAGING ITS EXPERTISE IN FUNDRAISING, PUBLIC/PRIVATE PARTNERSHIPS, AND AGILE OPERATIONS TO HELP THE NYC HEALTH DEPARTMENT DO MORE, MORE QUICKLY.

PROVIDE FUNDING FOR RESEARCH IN THE PREVENTION AND CURE OF BRAIN TUMORS

Disseminate polio related information through various media. Grants for polio related research. Aid individuals needing orthopedic equipment (braces,shoes,etc).

TO PROVIDE MUCH NEEDED ADVICE, GUIDANCE AND SUPPORT IN WEATHERING THE DISABILITIES AND CHALLENGES BROUGHT UPON BY ATOPIC DERMATITIS.

To sponser and support continuing research into methodologies for treating Parkinsons disease to staff and maintain a medical advisory committee to review and evaluate various research projects, and to support the efforts of scientists, doctors, clinics, and research projects with repect to the Organizations mission.

Dapper McDonald Als Charitable Trust falls under the Specifically Named Diseases category: Voluntary health organizations active in the prevention or treatment of specifically named diseases and conditions.

Support children with diabetes in South Carolina through diabetes camping opportunites, school support programs, and partnerships with other agencies with the goal to engage, encourage, empower, and inspire diabetic children to reach their full potential.

AFRICAN LEADERS MALARIA ALLIANCE, INC. SUPPORTS AN ALLIANCE OF 49AFRICAN HEADS OF STATE AND GOVERNMENT WORKING ACROSS COUNTRY AND REGIONAL BORDERS TO ACHIEVE ZERO MALARIA DEATHS BY 2030.

GUIDED BY THE BELIEF THAT EVERY PERSON WITH DIABETES HAS THE RIGHT TO LIVE A HEALTHY, HAPPY, AND PRODUCTIVE LIFE, TAKING CONTROL OF YOUR DIABETES EDUCATES AND MOTIVATES PEOPLE WITH DIABETES TO TAKE A MORE ACTIVE ROLE IN THEIR CONDITION AND PROVIDES INNOVATIVE AND INTEGRATIVE CONTINUING EDUCATION TO MEDICAL PROFESSIONALS CARING FOR PEOPLE WITH DIABETES.TCOYD'S VISION IS FOR ALL PEOPLE WITH DIABETES AND THEIR LOVED ONES TO HAVE FULL ACCESS TO PROPER EDUCATION AND THERAPY TO AID IN THE PREVENTION, EARLY DETECTION AND AGGRESSIVE MANAGEMENT OF DIABETES AND ITS COMPLICATIONS.

CHILDREN'S AUTISM CENTER, INC. IS DEDICATED TO PROVIDING THE HIGHEST QUALITY, MEDICALLY SUPPORTED THERAPY TO CHILDREN OF ALL AGES WITH AUTISM AND DEVELOPMENTAL / LANGUAGE DELAYS IN NORTHEAST INDIANA. CHILDREN'S AUTISM CENTER, INC. STRIVES TO MAINTAIN A TUITION ASSISTANCE FUND SO THAT ALL CHILDREN WITH A NEED FOR SERVICES MAY BENEFIT, REGARDLESS OF ABILITY TO PAY.

THE AMERICAN HEADACHE SOCIETY (AHS) IS A NONPROFIT PROFESSIONAL SOCIETY OF HEALTHCARE PROVIDERS DEDICATED TO THE STUDY AND TREATMENT OF HEADACHE AND FACE PAIN IN ORDER TO IMPROVE THE CARE AND LIVES OF PEOPLE LIVING WITH HEADACHE DISORDERS. IN ACCORDANCE WITH THIS MISSION, AHS PROMOTES THE EXCHANGE OF INFORMATION AND IDEAS CONCERNING THE CAUSES AND TREATMENTS OF HEADACHE AND RELATED PAIN DISORDERS; EDUCATES PHYSICIANS, HEALTH PROFESSIONALS, AND THE PUBLIC; AND ENCOURAGES SCIENTIFIC RESEARCH.

TO RAISE FUNDS TO SUPPORT THE BARBARA DAVIS CENTER FOR CHILDHOOD DIABETES, WHERE THOUSANDS OF PATIENTS OF ALL AGES FROM ALL OVER THE WORLD RECEIVE THE FINEST DIABETES CARE AVAILABLE.

To serve the fellowship of Adult Children of Alcoholics (ACA) worldwide and through its agency to help those seeking recovery from the effects of an upbringing in an alcoholic or otherwise dysfunctional environment. The means for recovery is provided through sharing information and personal experiences with one another and using the 12 steps and 12 traditions as a basis for this sharing. By doing so, the intent is to better the individual's life experiences and hence the communities wherein they reside.

FIDEC IS A U.S.-BASED NONPROFIT ORGANIZATION THAT DEVELOPS HEALTH CARE PROGRAMS TO IMPROVE GLOBAL HEALTH BY PREVENTING AND REDUCING THE BURDEN OF INFECTIOUS DISEASES. THE ORGANIZATION IS MADE UP OF PHYSICIANS, SCIENTISTS, AND OTHER HEALTH CARE PROFESSIONALS.

To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

TO FACILITATE RESEARCH INTO THE TREATMENT, MONITORING, DIAGNOSIS AND PREVENTION OF DIABETES.

PROVIDE EDUCATION AND SUPPORT TO FAMILIES LIVING WITH TYPE 1 DIABETES. MISSION IS ACCOMPLISHED THROUGH INFORMATION ON ITS WEBSITE AND THROUGH EDUCATIONAL CONFERENCES HELD THROUGHOUT THE YEAR.

The non-profit Alabama Game Changers (AGC) was created in 2014 to help merge the medical and educational communities together with respect to helping dyslexic children in Alabama. The initial focus was on assessment with early accurate diagnoses and advocacy. In 2020, Alabama

THE MULTIPLE SYSTEM ATROPHY COALITION PROVIDES TRUSTED EMOTIONAL SUPPORT, EDUCATION, RESEARCH FUNDING, AND SENSE OF COMMUNITY FOR PEOPLE LIVING WITH MULTIPLE SYSTEM ATROPHY; ENHANCING QUALITY OF LIFE AND COLLABORATIVELY BUILDING HOPE.

Providing world relief and reducing human suffering as a result of hunger, poverty, disease, war, natural disasters and other circumstances creating widespread human need and engaging in diabetes prevention research, feeding, and food distribution activities for charitable classes of persons throughout the state of Arizona, the United States and appropriate foreign countries.

THE PURPOSE OF THE DIGESTIVE HEALTH FOUNDATION IS TO RAISE CRITICAL FUNDS TO SUPPORT NEW RESEARCH AND CONTINUE EDUCATIONAL ACTIVITIES AT NORTHWESTERN MEMORIAL HOSPITAL'S DIGESTIVE HEALTH CENTER. CONTINUED ON SCHEDULE O.ALL FUNDS WILL SUPPORT THE DIGESTIVE HEALTH CENTER'S CONTINUED (SEE SCH. O) EFFORTS TO PROVIDE INTEGRATED AND COORDINATED RESOURCES FOR OUTSTANDING MEDICAL CARE, MEDICAL AND PATIENT EDUCATION, AND RESEARCH TOWARD THE PREVENTION, DIAGNOSIS, AND TREATEMENT OF DIGESTIVE DISEASES.

TO CONDUCT FUNDRAISING PROGRAMS IN ORDER TO PROMOTE AWARENESS OF THE DISEASE DUCHENNE MUSCULAR DYSTOPHY AND TO PROVIDE FUNDS FOR ADDITIONAL RESEARCH IN SEARCH OF A CURE FOR THIS DESEASE.

The Lennox-Gastaut Syndrome (LGS) Foundation is a nonprofit organization dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support.

Halo House's mission is to help save the lives of cancer patients battling leukemia, lymphoma, or myeloma by providing them with low-cost, fully furnished temporary housing while undergoing active cancer treatment at the Texas Medical Center.

EDUCATION AND TRAINING OF PARENTS AND TEACHERS CONCERNING METHODS IN DEALING WITH CHILDREN WHO HAVE DYSLEXIA

OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE.

PROJECT LYME'S MISSION IS TO ERADICATE THE EPIDEMIC OF LYME DISEASE AND OTHER TICK-BORNE ILLNESSES BY SPREADING AWARENESS, PROVIDING EDUCATIONAL RESOURCES, FUNDING PEER-REVIEWED RESEARCH, AND SUPPORTING ADVOCACY FOR SOLUTIONS TO END THE SUFFERING. SINCE 2016, PROJECT LYME HAS CHALLENGED MISINFORMATION ABOUT DIAGNOSIS AND TREATMENT, ADVOCATED FOR PATIENTS' RIGHTS, AND BUILT A COMMUNITY FOR LYME PATIENTS AS WELL AS THEIR LOVED ONES.

TO ENHANCE EDUCATIONAL, WORK AND LIFE OPPORTUNITIES FOR CHILDREN AND YOUTH WITH OR AT RISK OF DISABILITIES BY EMPOWERING THEM AND THEIR FAMILIES THROUGH SCREENING, IDENTIFICATION, INFORMATION, TRAINING AND MENTORING, AND BY PUBLIC OUTREACH AND ADVOCACY.

THE DEFEAT DIABETES FOUNDATION, INC. IS COMMITTED TO THE PREVENTION, EARLY IDENTIFICATION AND EFFECTIVE SELF-MANAGEMENT OF THE GLOBAL EPIDEMIC, DIABETES. WE WORK WITH INDIVIDUALS AND ORGANIZATIONS WORLDWIDE THROUGH OUR AWARENESS, INTERACTIVE AND ASSISTANCE PROGRAMS.

TO IMPROVE LIVES IN AFRICA AND ASIA THROUGH SUSTAINABLE, EVIDENCE-BASED PROGRAMS THAT COMBAT TARGETED DISEASES, AND PROMOTE CHILD AND MATERNAL HEALTH.

THE SOFT POWER HEALTH TRUST ("SPH TRUST") IS A NON-PROFIT ORGANIZATION DEDICATED TO FUNDING THE SOFT POWER MUKAGWA ALLAN STONE COMMUNITY HEALTH ("THE CLINIC") WHICH PROVIDES MALARIA EDUCATION, PREVENTION AND CONTROL, FAMILY PLANNING, AND PRIMARY AND PREVENTATIVE HEALTHCARE IN UGANDA.

WE EMPOWER INDIVIDUALS LIVING WITH DUP15Q SYNDROME AND OTHER RELATED RARE DISEASES TO REACH THEIR FULL POTENTIAL BY ADVANCING BREAKTHROUGH RESEARCH AND LIFE-CHANGING THERAPEUTIC TREATMENTS, SUPPORTING FAMILIES AFFECTED BY DUP15Q, AND PROMOTING ADVOCACY. WE ENVISION A WORLD WHERE FAMILIES, CLINICIANS, AND ADVOCATES ENABLE INDIVIDUALS WITH DUP15Q TO LIVE FULL AND PRODUCTIVE LIVES.

TO SUPPORT FAMILIES OF CHILDREN WITH AUTISM WHO ARE IN NEED OF, BUT CANNOT AFFORD, CRITICAL THERAPEUTIC SERVICES.

TO IMPROVE EVIDENCE-BASED CARE AND OPTIMIZE THE OUTCOMES OF PATIENTS WITH HPB DISORDERS THROUGHOUT THE WORLD BY:DISSEMINATING RESEARCH FINDINGS AND BEST TREATMENT PRACTICES ADVANCING HPB SPECIFIC TRAINING.

Wake Up Narcolepsy is a 501(c)(3) not-for-profit organization dedicated to supporting narcolepsy awareness and research to find a cure.

TO IMPROVE THE QUALITY OF LIFE TODAY FOR PEOPLE AFFECTED BY MITOCHONDRIAL DISEASE THROUGH SUPPORT, EDUCATION, EMPOWERMENT, AND ADVOCACY INITIATIVES AND TO ENGAGE THE COMMUNITY FOR BETTER CARE AND AWARENESS ABOUT THE DISEASE.

Believing in the value of sleep, Project Sleep aims to improve public health by educating individuals about the importance of sleep health and sleep disorders. Project Sleep will educate and empower individuals using events, campaigns and programs to bring people together and talk about sleep as a pillar of health.