Birth Defects & Genetic Diseases

"Cystic Fibrosis Research Institute (CFRI) is a 501(C)(3) organization founded in 1975, that funds innovative cystic fibrosis (CF) research and offers education, advocacy and psychosocial support programs and services to those with CF, as well as their families and caregivers." - https://www.cfri.org/about-us/

TO HELP DOCTORS IMPROVE THE SURVIVAL AND QUALITY OF LIFE FOR PEOPLE SUFFERING FROM HEART AND VASCULAR DISEASE THROUGH INNOVATION, INVESTIGATION AND EDUCATION.

Research in Endocrine Biochemistry and Molecular Biophysics to develop and understand the causes of diseases and potential therapies for cure.

CONDUCT MEDICAL RESEARCH, OFFER EDUCATIONAL PROGRAMS AND UNDERTAKE DEVELOPMENT PROJECTS THAT CONTRIBUTE TO THE PREVENTION, DIAGNOSIS AND TREATMENT OF DISEASE.

HEARING HEALTH FOUNDATION'S MISSION IS TO PREVENT AND CURE HEARING LOSS AND TINNITUS THROUGH GROUNDBREAKING RESEARCH.

TO FUND INNOVATIVE RESEARCH TOWARDS CURING HUNTINGTON'S DISEASE AND IMPACTING OTHER NEURODEGENERATIVE DISORDERS.

THE WORLD MOLECULAR IMAGING SOCIETY (WMIS) IS AN INTERNATIONAL SCIENTIFIC EDUCATIONAL ORGANIZATION DEDICATED TO THE UNDERSTANDING OF BIOLOGY AND MEDICINE THROUGH MULTIMODAL IN VIVO IMAGING OF CELLULAR AND MOLECULAR EVENTS INVOLVED IN NORMAL AND PATHOLOGIC PROCESSES AND UTILIZATION OF QUANTITATIVE MOLECULAR IMAGING IN PATIENT CARE.

EVERYONE READING ADVANCES THE LIVES OF CHILDREN WITH DYSLEXIA BY PROVIDING THE RESOURCES THEY NEED TO BECOME SUCCESSFUL READERS AND WRITERS.

THE GREENWOOD GENETIC CENTER IS A NONPROFIT INSTITUTE CENTERED ON CLINICAL GENETIC SERVICES, DIAGNOSTIC LABORATORY TESTING, EDUCATIONAL PROGRAMS AND RESOURCES, AND RESEARCH. WITH A FOCUS ON COMPASSIONATE PATIENT CARE AND INNOVATIVE SCIENTIFIC ADVANCEMENT, WE KEEP EVERY PATIENT AND THEIR FAMILIES AT THE FOREFRONT OF EVERYTHING WE DO. WE HAVE A VARIETY OF CLINIC LOCATIONS TO SERVE PATIENTS AND FAMILIES ACROSS THE LIFESPAN WITH A VARIETY OF GENETIC NEEDS AND CONCERNS.

Early intervention and Primary Clinic, Dental Care Clinic, Mental Health,HIV Antibody Testing, Medicine Provision, Medical Care Management and Referrals & Social Work.

ASGCT'S MISSION IS TO ADVANCE KNOWLEDGE, AWARENESS, AND EDUCATION LEADING TO THE DISCOVERY AND CLINICAL APPLICATION OF GENETIC AND CELLULAR THERAPIES TO ALLEVIATE HUMAN DISEASE.

FIND TREATMENTS AND A CURE FOR FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY (FSHD) WHILE EMPOWERING OUR FAMILIES.

THE FOUNDATION DEVELOPS AND SPEARHEADS INITIATIVES DESIGNED TO CHANGE LIVES TODAY FOR PEOPLE WITH CEREBRAL PALSY THROUGH RESEARCH, INNOVATION, AND COLLABORATION.

CPARF FUNDS US-BASED RESEARCH TO CHANGE WHAT'S POSSIBLE FOR PEOPLE WITH CEREBRAL PALSY, IMPLEMENTS PROVEN SCIENCE, AND ADVANCES INNOVATION TO BENEFIT ALL PEOPLE WITH DISABILITIES AROUND THE WORLD.

THE ORGANIZATION'S MISSION IS TO PROVIDE INDIVIDUALS WITH DISABILITIES CUSTOMIZED SERVICES, SUPPORTS, AND TECHNOLOGIES, WITH AN EMPHASIS ON EMPLOYMENT & TRAINING, TO FACILITATE THEIR CHOSEN ECONOMIC AND PERSONAL INDEPENDENCE.

ASTCT IS AN INTERNATIONAL PROFESSIONAL MEMBERSHIP ASSOCIATION OF MORE THAN 3000 PHYSICIANS, INVESTIGATORS AND OTHER HEALTH CARE PROFESSIONALS FROM MORE THAN 45 COUNTRIES, WHO ARE DEDICATED TO IMPROVING THE APPLICATION AND SUCCESS OF BLOOD AND MARROW TRANSPLANTATION AND RELATED CELLULAR THERAPIES. ASTCT STRIVES TO BE THE LEADING ORGANIZATION PROMOTING RESEARCH, EDUCATION AND CLINICAL PRACTICE IN THE FIELD THROUGH PROMOTING: COMPREHENSIVE DEVELOPMENT AND ADVANCEMENT OF THE FIELD OF BLOOD AND MARROW TRANSPLANTATION; EXCELLENCE IN CLINICAL CARE AND TREATMENT OUTCOMES THROUGH STANDARDS FOR BLOOD AND MARROW TRANSPLANTATION; INNOVATIVE RESEARCH TO ADVANCE THE SCIENCE AND CLINICAL APPLICATIONS OF OTHER CELLULAR THERAPIES; AND, RAPID DISSEMINATION OF BASIC AND CLINICAL BMT RESEARCH FINDINGS WITHIN THE MEDICAL FIELD AND TO THE GENERAL PUBLIC.

THE MISSION OF THE NOCC IS TO SAVE LIVES THROUGH THE PREVENTION AND CURE OF OVARIAN CANCER AND TO IMPROVE QUALITY OF LIFE FOR SURVIVORS AND THEIR CAREGIVERS.

TO FUNCTION AS A LOCAL AND NATIONAL CLINIC AND DIAGNOSTIC REFERENCE RESOURCE FOR BIRTH DEFECT AND GENETIC DISORDERS; TO PROVIDE TECHNOLOGY AND SERVICES TO REFERRING PHYSICIANS AND PATIENTS FOR THE BENEFIT OF ALL PERSONS SUFFERING FROM ILLNESS, DEFECTS OR DISORDERS; TO TEACH MEDICAL STUDENTS, RESIDENTS, FELLOWS AND OTHER PERSONNEL ENGAGED IN HEALTH SERVICES AND HEALTH EDUCATION; TO ADVANCE SCIENTIFIC KNOWLEDGE THROUGH RESEARCH; TO TAKE ACTIVE PART IN THE PLANNING FOR AND THE PROMOTION OF THE SPECIFIC GENETIC AND GENERAL MENTAL AND PHYSICAL HEALTH AND HUMAN NEEDS AND INTERESTS OF THE LOCAL AND NATIONAL PATIENT POPUATION AND THEIR PHYSICIANS; TO PROVIDE SERVICES RELATED TO GENETICS; TO GATHER DATA AND ANALYZE IT FOR THE PURPOSE OF SHARING IT GENERALLY WITH THE LOCAL, NATIONAL AND INTERNATIONAL MEDICAL COMMUNITIES; TO IMPROVE AND DEVELOP TESTING PROTOCOLS AND KNOWLEDGE AND TO SHARE SUCH RESULTS FREELY AND OPENLY; TO ESTABLISH, OWN, OPERATE, CONDUCT OR MAINTAIN FACILITIES FOR TEACHING.

TREATMENT RESEARCH INSTITUTE IS AN INDEPENDENT NOT-FOR-PROFIT ORGANIZATION DEDICATED TO TRANSLATING RESEARCH INTO IMPROVED POLICIES AND PROGRAMS TO ADDRESS THE DEVASTATING EFFECTS OF SUBSTANCE ABUSE ON FAMILIES, SCHOOLS, BUSINESSES, CRIMINAL JUSTICE AND HEALTHCARE.

THE MISSION OF THE BROAD INSTITUTE IS TO PROPEL PROGRESS IN BIOMEDICINE, THROUGH RESEARCH AIMED AT THE UNDERSTANDING AND TREATMENT OF DISEASE AND THE DISSEMINATION OF SCIENTIFIC KNOWLEDGE TO THE SCIENTIFIC COMMUNITY TO BENEFIT THE PUBLIC.

THE PRIMARY PURPOSE OF THE INTERNATIONAL SOCIETY FOR AUTISM RESEARCH (INSAR) IS TO FOSTER AUTISM RESEARCH BY NEW AND ESTABLISHED AUTISM RESEARCHERS BY BRINGING AUTISM SCIENTISTS TOGETHER TO SHARE FINDINGS AND NEW IDEAS THROUGH AN ANNUAL SCIENTIFIC MEETING AND VARIOUS PUBLICATIONS.

THE ORGANIZATION'S MISSION IS TO FIGHT FOR A CURE FOR THE PACHYONYCHIA CONGENITA DISEASE, CONNECT AND HELP PATIENTS, AND EMPOWER RESEARCH.

OUR WORLDWIDE MISSION IS TO STIMULATE RESEARCH, DISSEMINATE EDUCATIONAL INFORMATION AND PROMOTE THE SUPERIOR CLINICAL CARE OF PATIENTS IN ALL ASPECTS OF REPRODUCTIVE AND FERTILITY MEDICINE.

THE CHASE FOUNDATION'S SOLE MISSION IS TO SUPPORT THE CHASE CHILD LIFE PROGRAM. THE CHASE CHILD LIFE PROGRAM'S MISSION OPERATES ON THE PRINCIPLE THAT THE BEST MEDICAL CARE ALONE ISN'T ENOUGH. THE CHILD LIFE STAFF ADDRESSES THE EMOTIONAL, SOCIAL, AND DEVELOPMENTAL NEEDS OF CHILDREN. THE CHASE CHILD LIFE PROGRAM STRIVES TO PROMOTE OPTIMUM DEVELOPMENT OF CHILDREN AND THEIR FAMILIES, TO MAINTAIN NORMAL LIVING PATTERNS AND TO MINIMIZE PSYCHOLOGICAL TRAUMA.

TO CONDUCT BASIC SCIENTIFIC RESEARCH ON TOPICS RELATING TO THE ORIGIN, ORGANIZATION AND OPERATION OF LIVING THINGS AND THEIR PARTS, AND TO THE NATURE OF ECOSYSTEMS AND ENVIRONMENTS CONDUCTIVE TO LIFE.

TO PROMOTE ADVANCED NEUROSURGICAL EDUCATION, ACADEMIC RESEARCH, INSTRUMENTATION DONATION AND CHARITY SURGICAL TRIPS THROUGH HANDS-ON EDUCATION, NEUROSURGICAL MEETINGS AND INSTRUMENTATION DEVELOPMENT AND DONATIONS.

See Mission Statement in Schedule O

SEE SCHEDULE O.

TO IMPROVE THE QUALITY OF HEALTH, EDUCATION, AND SOCIAL SERVICES FOR FAMILIES AND CHILDREN WITH SPECIAL NEEDS AND AT-RISK YOUTH

TO IMPROVE HEALTH AND BIRTH OUTCOMES FOR PREGNANT WOMEN.

THE MISSION OF THE ALTIUS INSTITUTE FOR BIOMEDICAL SCIENCES (ALTIUS) IS TO ADVANCE THE SCIENCE OF GENE REGULATION FOR THE BENEFIT OF HUMAN HEALTH. ALTIUS AIMS TO ACCOMPLISH THIS MISSION BY RADICALLY ADVANCING BIOMEDICAL DISCOVERY THROUGH THE DEVELOPMENT AND APPLICATION OF NEW TECHNOLOGIES AND APPROACHES FOR ILLUMINATING CELL AND TISSUE FUNCTIONS IN BOTH HEALTH AND DISEASE STATES. TO ENABLE ITS MISSION, ALTIUS UTILIZES A NEW TYPE OF SCIENTIFIC AND TECHNOLOGICAL DISCOVERY ENVIRONMENT DESIGNED TO FOSTER LEAPS IN INNOVATION BY ENABLING ITS SCIENTISTS TO MOVE FROM IDEAS TO DATA FASTER THAN IN ANY OTHER ACADEMIC OR BIOTECHNOLOGY SETTING. ALTIUS CONTINUALLY STRIVES TO TRANSLATE ITS DATA AND TECHNOLOGY INTO NOVEL APPROACHES FOR DIAGNOSING AND TREATING DISEASE AND FOR IMPROVING HUMAN HEALTH.

TO PROVIDE TRANSPORTATION, LODGING, AND FUNDING FOR RELATED EXPENSES WHEN CRITICALLY ILL CHILDREN HAVE TO TRAVEL TO AND FROM MEDICAL FACILITIES IN THE MID-ATLANTIC REGION.

FETAL MEDICINE FOUNDATION, INC. ("FMF") IS A 501(C)3 NON-PROFIT ORGANIZATION WHOSE PRIMARY PURPOSE IS TO IMPROVE THE HEALTH CARE OF WOMEN AND THEIR FETUSES. FMF SPONSORS EDUCATIONAL ACTIVITIES (MEDICAL CONFERENCES, WORKSHOPS, SEMINARS, AND COURSES) TO TEACH THE NEWEST METHODS TO IMPROVE OBSTETRICAL CARE AND THE HEALTH OF THE FETUS TO PHYSICIANS AND OTHER HEALTH CARE PROVIDERS AROUND THE UNITED STATES AND ABROAD. FMF ALSO COORDINATES RESEARCH DATA AND STUDIES TO DEVELOP NEW APPROACHES TO ASSESS FETAL HEALTH AND METHODS TO TREAT HIGH RISK PREGNANCY CONDITIONS. A CURRENT MAJOR FOCUS OF THE ORGANIZATION IS IMPROVING THE CARE OF WOMEN IN LABOR AND DELIVERY. ANY NEW APPROACH SHOULD IMPROVE OUTCOMES FOR BOTH MOTHER AND BABY AND REDUCE THE NEED FOR EMERGENCY DELIVERIES BY DEVELOPING BOTH AN OVERALL IMPROVED ENVIRONMENT TO PROMOTE THE SAFETY, QUALITY, AND EXPERIENCE FOR PATIENTS IN LABOR AND A UNIQUE QUANTITATIVE ASSESSMENT OF ELECTRONIC FETAL MONITORING TO IMPROVE THE ASSESSMENT OF FETAL AND M

SUPPORTING UNIQUE NEEDS OF CHILDREN

AMONG IT'S MANY PROGRAMS, THE FOUNDATION PROVIDES MEDICAL SUPPORT TO SERVICE MEMBERS- AND THEIR FAMILIES, OFFERS SCHOLARSHIPS AND GRANTS TO FAMILIES AND STAFF, SUPPORTS A HOST OF PROGRAMS FOR CHILDREN, SUPPORTS EDUCATIONAL CONFERENCES, SPONSORS AN ANNUAL LECTURE ON MILITARY MEDICAL RESEARCH, SUPPORTS MEDICAL RESEARCH AND CLINICAL CARE WITH EQUIPMENT AND TRAINING. SINCE ITS' ESTABLISHMENT, WITH THE GENEROSITY OF IT'S SUPPORTERS, THE FOUNDATION HAS PROVIDED OVER 1,400,429 IN EQUIPMENT AND SERVICES.

Welcoming all, partnering together, enriching lives.

THE NATIONAL FRAGILE X FOUNDATION UNITES THE FRAGILE X COMMUNITY TO ENRICH LIVES THROUGH EDUCATIONAL AND EMOTIONAL SUPPORT, PROMOTES PUBLIC AND PROFESSIONAL AWARENESS, AND ADVANCES RESEARCH TOWARD IMPROVED TREATMENTS AND A CURE FOR FRAGILE X.

TECHNOLOGY (ART) CLINICS.PROVIDING BROAD ACCESS TO SINGLE GENE DISORDER DIAGNOSTICS SO THAT INDIVIDUAL WITH A KNOWN GENETIC CONDITION CAN HAVE THEIR EMBRYOS EVALUATED TO IMPROVE THEIR LIKELIHOOD OF HAVING A BABY WHO IS NOT AFFECTED BY THE GENETIC CONDITIONSPONSORING RESEARCH THAT ADVANCES THE FIELD OF EMBRYONIC COMPETENCE AND PROVIDES A CLEAR PATHWAY TO IMPROVED CLINICAL OUTCOMES AND REDUCED COMPLICATIONS FOR IVF PATEINTS.SUPPORTING CONTINUING MEDICAL EDUCATION (CME), GRADUATE-LEVEL EDUCATIONAL INITIATIVES, AND OTHER EDUCATIONAL ACTIVITIES TO ADVANCE OUR UNDERSTANDING AND THE APPLICATION OF EMBRYONIC DIAGNOSTICS AROUND THE WORLD.

The Ralston Volunteer Fire Department & Rescue Squad, Inc. is committed to the preservation and protection of life, property, and environment from the adverse effects of fire, medical, and hazardous conditions through sustained training, progressive education, and constant diligence to provide the highest level of customer service.

To serve as a resource for individuals and their families affected by Parkinsons disease in the Carolinas, through education, community outreach and direct support. We actively seek opportunities to connect individuals with Parkinsons disease and their families to support groups, professional agencies and other community resources so that will help them maintain or improve their independence and quality of life.

Cystic Fibrosis Worldwide Inc. falls under the Birth Defects & Genetic Diseases category: Organizations that conduct research which can be used to improve the prevention, diagnosis and treatment of any of a number of illnesses or conditions that are hereditary and passed from parent to offspring.

Dedicated to raising funds for Alstrom Syndrome genetic and medical research, increasing awareness of the rare disease among the general public and medical communities, and improving family support for those affected by the Syndrome.

To advocate for and facilitate research for the rare genetic syndrome, Cri du Chat/5p Minus syndrome. To assist in the development of a treatment to minimize or cure symptoms of CdCs/5p Minus Syndrome.

TO RAISE AWARENESS IN THE GREATER PHOENIX JEWISH COMMUNITY REGARDING JEWISH GENETIC DISEASES AND TO EDUCATE ABOUT TRAGIC DISORDERS. THE CENTER PROVIDES AFFORDABLE CARRIER TESTING SO THAT NO JEWISH FAMILY IN OUR COMMUNITY WILL NEED TO ENDURE THE GRIEF AND SUFFERING OF LOSING A CHILD TO A PREVENTABLE GENETIC DISEASE.

THE MISSION OF IACFS/ME IS TO PROMOTE, STIMULATE AND COORDINATE THE EXCHANGE OF IDEAS RELATED TO CHRONIC FATIGUE SYNDROME/MYALGIC ENCEPHALOMYELITIS( IACS/ME) AND FIBROMYAGIA(FM) RESEARCH, PATIENT CARE AND TREATMENT. THE ORGANIZATION ALSO CONDUCTS AND/OR PARTICIPANTS IN LOCAL, NATIONAL AND INTERNATIONAL SCIENTIFIC CONFERENCES IN ORDER TO PROMOTE AND EVALUATE NEW RESEARCH AND TO ENCOURAGE FUTURE RESEARCH VENTURES AND COOPERATIVE ACTIVITIES TO ADVANCE SCIENTIFIC AND CLINICAL KNOWLEDGE OF THESE ILLNESSES.

PROVIDE COMPREHANSIVE MEDICAL EVALUATIONS OF INDIVIDUALS WITH DOWN SYNDROME. PROVIDE EDUCATION, INFORMATION AND SUPPORT TO THOSE INDIVIDUALS AND THEIR FAMILIES.

TO PROMOTE ZEBRAFISH RESEARCH IN EFFORTS TO BETTER HUMAN HEALTH; TO PROMOTE EDUCATIONAL INITIATIVES, PROGRAMS AND FORUMS; TO ADVOCATE ZEBRAFISH RESEARCH AND REPRESENT THE INTERESTS OF THE INTERNATIONAL COMMUNITY; TO PROMOTE INTERNATIONAL COHESION AND COOPERATION IN ZEBRAFISH RESEARCH; TO FACILITATE THE EXCHANGE OF INFORMATION AND RESOURCES WITHIN THE ZEBRAFISH COMMUNITY.

Movement Disorders Foundation helps people with movement disorders live better lives through collaborative partnerships with those who conduct innovative research, offer professional and patient-focused education and provide unique care services.