"Stephen Heywood was diagnosed with ALS at age 29. After finding no treatment options, his brother, Jamie Heywood, realized that a gap existed in the preclinical development of therapies for ALS.
In 1999, Jamie founded the ALS Therapy Development Foundation, now the ALS Therapy Development Institute (ALS TDI), in the basement of his family's Newton, MA home in an effort to bridge this gap and bring effective treatments to people with ALS as quickly as possible." - https://www.als.net/about-als-tdi/
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