SEE SCHEDULE O.THE PURPOSE OF THE ORGANIZATION IS TO RAISE FUNDS FOR MEDICAL RESEARCH FOR A RARE DISEASE CALLED GM1 GANGLIOSIDOSIS THAT HAS NO CURE OR TREATMENT OTHER THAN COMFORT MEASURES AND SYMPTOM MANAGEMENT. PROMISING RESEARCH EXISTS, BUT LACKS FUNDING. THE ORGANIZATION HOPES TO UNIT FAMILIES OF THOSE WHO SUFFER FROM THIS DISEASE AND THEIR SUPPORTERS BY FUNDRAISING FOR A CURE.
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