Specifically Named Diseases

"Stephen Heywood was diagnosed with ALS at age 29. After finding no treatment options, his brother, Jamie Heywood, realized that a gap existed in the preclinical development of therapies for ALS. In 1999, Jamie founded the ALS Therapy Development Foundation, now the ALS Therapy Development Institute (ALS TDI), in the basement of his family's Newton, MA home in an effort to bridge this gap and bring effective treatments to people with ALS as quickly as possible." - https://www.als.net/about-als-tdi/

The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson’s community.

TO PROVIDE LONG TERM DIABETES MELLITUS RESEARCH IN CONJUNCTION WITH A HOSPITAL.

TB ALLIANCE IS A NOT-FOR-PROFIT ORGANIZATION DEDICATED TO THE DISCOVERY, DEVELOPMENT AND DELIVERY OF BETTER, FASTER-ACTING AND AFFORDABLE TUBERCULOSIS DRUGS THAT ARE AVAILABLE TO THOSE WHO NEED THEM.

TO ADVANCE KNOWLEDGE OF, AND CARE FOR PEOPLE WITH BLADDER CANCER.

THE ORGANIZATION SUPPORTS AND ENCOURAGES CLINICAL INVESTIGATIONS AND MEDICAL RESEARCH IN COLLABORATION WITH THE UNIV. OF FL COLLEGE OF MEDICINE CONDUCTED THROUGHOUT THE WORLD FOR TREATMENT & CURE OF REFLEX SYMPATHETIC DYSTROPHY (RSD) & COMPLEX REGIONAL PAID SYNDROME (CRPS).

ADVANCING HEALTH AND WELLBEING WORLDWIDE

TO HELP FIND THE CURE FOR DIABETES, AND UNTIL THAT GOAL IS ACHIEVED, TO PROVIDE THE CARE AND SELF-MANAGEMENT SKILLS NEEDED TO COMBAT THE LIFE-THREATENING COMPLICATIONS OF DIABETES, AND TO PROMOTE PUBLIC EDUCATION ABOUT THE CAUSES, PREVENTION AND TREATMENT OF THE DISEASE.

TO BE THE PREEMINENT SOURCE OF MEDICAL-GRADE PORCINE TISSUE UTILIZED TO CURE DISEASES, WITH THE PRIMARY COMMITMENT TO DIABETES.

PROTECT AND ENHANCE THE HEALTH OF THE U.S. SWINE HERD THROUGH COORDINATED GLOBAL RESEARCH MONITORING, TARGETED RESEARCH INVESTMENTS THAT MINIMIZE THE IMPACT OF FUTURE DISEASE THREATS, AND ANALYSIS OF SWINE HEALTH DATA.

TO SUPPORT ALS RESEARCH AND SCIENTIFIC INVESTIGATIONS AT THE UNIVERSITY OF MASSACHUSETTS CHAN MEDICAL SCHOOL BY RAISING FUNDS THROUGH EVENTS, CAMPAIGNS, FOUNDATION GRANTS AND NUMEROUS OTHER COMMUNITY OUTREACH ACTIVITIES, TO AID IN FINDING A CAUSE, TREATMENT AND CURE FOR ALS.

TO FUND RESEARCH AND PUBLIC AWARENESS FOCUSED ON DEVELOPING A CURE FOR EOSINOPHILIC DISORDER

TO PROVIDE NEW MEXICO CANCER PATIENTS AND THEIR FAMILIES ACCESS TO THE LATEST RESEARCH, TECHNOLOGIES, AND CLINICAL SERVICES IN PREVENTION, SCREENING, DETECTION, DIAGNOSIS/STAGING, TREATMENT, SUPPORTIVE CARE, AND CONTINUED SURVEILLANCE THROUGH COLLABORATION AMONG PUBLIC AND PRIVATE HEALTHCARE PROVIDERS.

To advocate for and fund research directed towards a cure or treatment options for patients with Sanfilippo Syndrome

Let Every Woman Know - Alaska is dedicated to raising awareness, sharing information, and saving lives through local education of all Alaskans and support for those women.

TO INCREASE AWARENESS, IDENTIFICATION, UNDERSTANDING, AND TREATMENT OF CHILDREN WITH APRAXIA, DYSLEXIA, AND SEX CHROMOSOME DISORDERS AND TO FOSTER AND PROMOTE SCIENTIFIC RESEARCH RELATING TO THESE DISORDERS.

APFED IS DEDICATED TO PREVENTING AND CURING EOSINOPHIL-ASSOCIATED DISEASES WHILE ENHANCING THE QUALITY OF LIFE FOR PATIENTS AND FAMILIES. WE ACHIEVE THIS BY PASSIONATELY EMBRACING, SUPPORTING, AND ADVANCING EDUCATION, AWARENESS, RESEARCH, ADVOCACY, AND SUPPORT INITIATIVES FOR T

TO FUND RESEARCH TO HELP THE MEDICAL COMMUNITY BETTER UNDERSTAND ADDICTION DISORDERS BOTH ON THE PSYCHOLOGICAL AND PHYSIOLOGICAL LEVELS.

THE INTERNATIONAL SOCIETY OF MANNOSIDOSIS AND RELATED DISEASES IS AN INTERNATIONALLY FOCUSED ORGANIZATION WHOSE MISSION IS TO ADVOCATE FOR FAMILIES AFFECTED BY ONE OF THE GLYCOPROTEIN STORAGE DISEASES:ALPHA MANNOSIDOSIS, ASPARTYLGLUCOSAMINURIA, BETA-MANNOSIDOSIS, FUCOSIDOSIS, GALACTOSIALIDOSIS,MUCOLIPIDOSIS II (I-CELL DISEASE), MUCOLIPIDOSIS III (PSEUDO-HURIER POLYDYSTROPHY), SCHINDLER DISEASE AND SIALIDOSIS. THESE DISEASES ARE THE ULTRA-ORPHANS OF THE LYSOSOMAL STORAGE DISEASE FAMILY, WHICH ENCOMPASS OVER 40 SIMILAR DISORDERS, AND CURRENTLY HAVE FEW TREATMENTS BEYOND SYMPTOMATIC CARE.ISMRD'S ADVOCACY EFFORTS ARE NOT LIMITED BY BORDERS, LANGUAGE, RACE OR RELIGION.

THE MISSION OF THE MATTHEW AND ANDREW AKIN FOUNDATION IS TO SUPPORT THE WORLD-RENOWNED EXPERTS AT THE HLH CENTER OF EXCELLENCE AT CINCINNATI CHILDREN'S HOSPITAL AND THEIR CORE PRIORITIES OF RESEARCH, EDUCATION AND FAMILY SUPPORT. WE ALSO GIVE BACK TO THE ORGANIZATIONS THAT SUPPORTED OUR FAMILY DURING OUR JOURNEY IN AN EFFORT TO MAKE A DIFFERENCE FOR THOSE THAT WILL BE FOLLOWING IN OUR FOOTSTEPS IN THE FUTURE.

THE ORGANIZATION IS WORKING TOWARDS HELPING FIND CURES AND/OR EFFECTIVE TREATMENTS FOR ORPHAN (RARE) DISEASES, AND TO FACILITATE RESEARCH OF SUCH DISEASES.

THE LYME DISEASE RESEARCH FOUNDATION, INC. IS A PUBLIC NON-PROFIT ORGANIZATION DEDICATED TO RESEARCH INTO THE UNDERSTANDING AND CARE OF PATIENTS WITH PERSISTENT SYMPTOMS OF LYME DISEASE.

RHIZOKIDS INTERNATIONAL WILL SECURE FUNDS TO SUPPORT RHIZOMELIC CHONDRODYSPLASIA PUNCTATA (RCDP) RESEARCH PROGRAMS, PROVIDE EDUCATION AND PROMOTE AWARENESS OF RCDP, AND SUPPORT RCDP FAMILIES.