Patient & Family Support

"LÖSEV' i kurmaktaki amacımız lösemili ve kan hastası çocukların, sağlık ve eğitim başta olmak üzere her türlü ihtiyaçlarının sağlanmasına yardımcı olmak, bunun yanı sıra, kalıtsal ve edinsel kan hastalıkları konusunda ulusal düzeyde tedavi, eğitim ve araştırma kurumları kurmak ve işletmektir. Türkiye'de her yıl 2000 yeni lösemili çocuk vakası ortaya çıkıyor. Bu durum bazen dar bütçeli ailelerde ebeveyni lösemili çocuk ile diğer çocukları arasında seçim yapmaya kadar zorluyor. Bu sebeple vakfımız gerçekleştirdiği tüm faaliyetlerde, gelir elde etmenin yanı sıra, lösemi hastalığını tanıtmayı, lösemili çocukların ve ailelerinin sıkıntılarını topluma aktarmayı ve bu vesileyle toplumu bilinçlendirmeyi amaçlamaktadır." https://www.losev.org.tr/v6/sayfa/amacimiz-3

"Action on Alzheimer's & Dementia was founded as a registered charity in 2012 (#929) by our President Elizabeth Stewart whose mother lived with Alzheimer's disease from 2004-2012 and had been diagnosed at the age of 67. At that time, there was little information available in the community and very little support for the person with dementia and their family after a diagnosis. Elizabeth's goal was to make sure that no other family living with Alzheimer's disease would have to go through the journey alone and AAD was created to be that resource for families in their time of need. " https://aad.bm/about-aad "Mission: To provide support, services and education to individuals, families and caregivers affected by Alzheimer's disease and related dementia's in Bermuda." https://www.givebermuda.org/index.php?section=organizations.mission&action=main&fwID=51

"Cancer Buddies is the peer-to-peer support project of People Living with Cancer (PLWC). It was established in 2002 by Carl Liebenberg and Linda Greeff, both of whom are cancer survivors. This volunteer support project is aligned with international protocols, and is now one of the most established volunteer psycho-social projects in the country. The buddy support network allows cancer patients to interact with and receive advice and support from cancer survivors who have a similar profile, disease and treatment protocol. Cancer Buddies has established branches in the Western Cape, Pretoria Johannesburg and George. All our volunteers and caregivers are cancer survivors and have been through the cancer journey themselves. Our aim is to provide support to newly diagnosed cancer patients when treatment starts, to assist with the initial adjustment to the process. This service ensures that cancer patients and their caregivers have access to support services near their treatment units." https://cancerbuddies.org.za/about

"Le Rire Médecin rêve d’un monde où, quelle que soit sa condition et la gravité de sa maladie, chaque enfant à l’hôpital trouvera toujours à ses côtés des alliés qui sauront restaurer chez lui l'insouciance de son âge, l’écouter, le comprendre, le faire rire et l’accompagner pour l’aider à passer au mieux le cap de l’hospitalisation et trouver en lui les ressources pour vaincre la maladie." https://www.leriremedecin.org/nous-connaitre/qui-sommes-nous.html

"Camp Quality brings positivity, fun and laughter back into the lives of kids facing cancer. We are there for children and their families, from the heartbreaking news of a cancer diagnosis, through every step of the experience. Our programs and services help families build optimism and resilience through community, education and fun. We are there for kids (0-15) dealing with their own cancer diagnosis, or the diagnosis of a sibling or parent, every step of the way. We’re proud to have improved the quality of life for kids impacted by cancer, and their families, for 40 years." https://www.campquality.org.au/about-us/

"Childhood Cancer Ireland is a charity founded by and led by parents of children with cancer and survivors. As a parent and survivor-led charity, we understand that a diagnosis of childhood cancer has a devastating impact on the entire family. We help to ease the burden of diagnosis and treatment on children and their families by raising funds to provide practical and emotional supports. We also advocate for better supports and services for families, as well as better treatments and outcomes for children, adolescents and young adults." https://childhoodcancer.ie/about-us/

"Föräldraföreningen för Dyslektiska Barn (FDB) är en förening som ger råd, stöd och vägledning till familjer som har barn med läs- och skrivsvårigheter/dyslexi. Vi arbetar också för att förbättra villkoren i skolan för barn och ungdomar med läs- och skrivsvårigheter/dyslexi. FDB är en ideell, rikstäckande förening med lokalavdelningar på flera platser runtom i Sverige. Föreningen bildades 1992 av en grupp föräldrar, den är partipolitiskt och religiöst obunden och öppen för alla. FDB samverkar också med Dyslexiförbundet, Dyslexiföreningen och Svenska Dyslexistiftelsen." https://fdb.se/om/

"La Asociación Mexicana de Ayuda a Niños con Cáncer inició sus actividades el 15 de junio de 1982, en respuesta a las deficiencias hospitalarias y asistenciales que enfrentaban los niños diagnosticados con cáncer y sus familias. Hoy continuamos trabajando con el firme propósito de que ningún menor de edad con cáncer abandone su tratamiento por falta de recursos económicos; además, seguimos incidiendo en políticas públicas para asegurar que los diagnósticos sean oportunos y la atención médica sea integral y de calidad. Somos la única organización social en el país con un modelo de intervención social que se replica en 23 estados del país, a través de la Red Nacional AMANC, con un impacto anual que supera a las 3,000 familias." https://www.amanc.org/somos/

"La Asociación se constituyó por el gran desconocimiento que existía en la sociedad en general sobre el TDAH/TC y por la necesidad de mejorar el conocimiento y la comprensión del TDAH/TC en todos los ámbitos, en especial en el educativo, sanitario, judicial y familiar. Esta concienciación y mejor conocimiento del problema constituyen el primer paso, imprescindible, para el desarrollo y despliegue de medidas para reducir y/o corregir los efectos indeseados del TDAH/TC y mejorar la atención del problema. Nuestro principal objetivo, a través de nuestros programas de actuación, es mejorar la calidad de vida de las personas afectadas y de sus familias." https://www.ampachico.es/la-asociacion-2/

"Canteen is an Australian not-for-profit that provides free and tailored support to young people aged 12-25 who are impacted by cancer. Whether they are dealing with their own diagnosis, a close family member’s cancer or the death of a loved one, Canteen provides: - connection with peers in similar situations through events and programs - free counselling and individual support - 24/7 online support services for young people and parents - access to free information and resources - specialist support services for young cancer patients All support services are underpinned by Canteen’s research and evaluation team who conduct world-class psychosocial research with the ultimate goal of transforming the lives of young people affected by cancer." https://www.canteen.org.au/about-us/about-canteen

"The Humour Foundation is a national, registered charity co-founded by the late General Practitioner Dr Peter Spitzer and professional performer Jean-Paul Bell. The first Clown Doctors outing was in Tasmania in response to the Port Arthur massacre, with the first regular Clown Doctors program established at Sydney Children’s Hospital, Randwick in 1997, and at the Royal Children’s Hospital Melbourne the following year. In 2011 we responded to the need for laughter therapy and human connection in the residential aged care sector and launched our first Laughter Care program in Melbourne (previously known as the Elder Clowns program). Our Mission: To enhance wellbeing, lift spirits and improve health through joyful humour, insightful connection, and creative play. The Humour Foundation delivers the many benefits of laughter where it is unexpected, yet most needed." https://humourfoundation.org.au/about-us/

"Nkosi’s Haven is a recognized NGO in South Africa that has been in operation since 1999 offering holistic care and support for destitute HIV/AIDS infected mothers, her children, and resulting AIDS orphans (infected or not). Nkosi’s Haven is named after Nkosi Johnson, the young AIDS activist who passed away on International Children’s Day on June 1st 2001, who dearly wanted a facility that would care for the mom and her child. He had been separated from his mom because of the HIV diagnosis and he never wanted that to happen to any other child. He also wanted HIV positive people to be cared for without discrimination or prejudice." https://nkosishaven.org/who-we-are/

"当会は癌経験者とそのご家族様が病気のストレスを少しでも緩和できるよう様々なスポーツ・文化交流イベント、サービスの機会を創出していきます。 同じ悩みを抱える皆様が相互に交流することで情報交換を図るとともに生きる活力を与え合う場を提供します。 　また、社会から“孤独・孤立”に悩む方々の救済活動も取り組んでいきたいと思います。 まだまだ産声を上げたばかりでございますが是非とも皆様にご参加いただいて混沌としたこの時代を一緒に乗り越えていきたいと思います。" https://npo-kinnotsue.org/established.html

"Make-A-Wish Hong Kong was registered in Hong Kong as a charity (registration number: 91/5366) in 1998 and became a member of Make-A-Wish Foundation International, the world’s largest wish-granting organization with 40 affiliates serving over 50 countries and territories nowadays. Collectively we have realized more than 500,000 wishes worldwide since 1980. Our mission is to create life-changing wishes for children with critical illnesses aged between 3 and 17, in Hong Kong and Macau, to enrich the human experience with hope, strength and joy. A wish creates an opportunity for hope and the ability to experience life beyond illness. Serving as a supplement to medical treatment and complement one another as acknowledged by healthcare professionals, we believe that a Wish Journey – through which a child articulates, refines and realizes his/her wish – will bring a transformative impact not just to the child concerned, but also to the child’s family as they tackle some of their most difficult trials in life. To date, Make-A-Wish Hong Kong has transformed over 2,200 children’s lives. We are dedicated to making every eligible child’s wish come true." https://makeawish.org.hk/about-us/about-make-a-wish/?lang=en

"Somos una organizacion sin fines de lucro en ayuda a una familia humilde con un niño con cancer, provenientes de toda la Zona Noreste en Cd. Obregon,Son." https://www.facebook.com/fundacionjesucristomiserico/

"The Guardian Angels Trust is a small charitable trust set up by Leanne Hegan and Helen Jackson in 2004, specifically to support the needs of terminally ill children and their families. The Trust was set up in response to the growing awareness that poverty does exist within New Zealand and that families who have a palliative child are often thrust into a level of poverty as they struggle to do the hardest job that any parent will ever have to do. The Guardian Angels Trust was set up to help minimise some of the financial stressors so that families can focus on supporting their sick child to live as fully as possible for as long as possible. To that extent a commitment was made by the Trustees to raise money that would be given directly to families through practical means such as the provision of supermarket vouchers, help with household bills and incidentals that would directly benefit the wellbeing of the child and family." https://guardianangels.co.nz/

DKMS is an international non-profit organization dedicated to saving the lives of patients with blood cancer and blood disorders.

"In January 2007, Club Rainbow established its first purpose-built facility – Rainbow Family Care Centre. This serves as the focal point of our many services and activities. It has two other branches located in the KK Women’s and Children’s Hospital and the National University Hospital. Today, Club Rainbow (Singapore) takes on a holistic approach to conduct numerous events and programmes for our beneficiaries through 5 core pillars - Social Work, Therapy Intervention, Education Support, Art Development and Vocational Development. MISSION: We support and empower children with chronic illnesses and their families by providing compassionate relevant services in their journey towards an enriching life. VISION: To be the charity of choice that inspires hope and makes a difference in the lives of children with chronic illnesses and their families." https://www.clubrainbow.org/whoweare

"Assistenza sociale, Formazione per volontari, Materiale informativo" https://www.favo.it/profilo-associazione/farc.html

"At Make-A-Wish, we exist to bring amazing people together to grant inspirational, life-changing wishes for children with a critical illness. As one of Australia's most trusted charities*, we work in partnership with sick children, their families and medical teams to design and deliver wishes that are as unique as the children who imagine them. No two wishes are alike - but every wish transforms the lives of those involved, from children themselves to their family, friends, the wish team and wider community." https://www.makeawish.org.au/about-us

"Dementia Australia is the national peak body supporting people living with dementia, their families and carers. Dementia Australia responds to this challenge with trusted information, education and support services. We advocate to government and in the community for positive change. We support vital research and health workers providing essential care. We equip communities with tools and knowledge to make our society more dementia friendly. We involve people impacted by dementia in our work, to respect and reflect the diverse range of dementia experiences across Australia. We amplify the voices of people impacted by dementia, to empower their self-advocacy and reduce stigma in the community. We are here to support people impacted by dementia, and to enable them to live as well as possible" https://www.dementia.org.au/about-dementia-australia

"The Alike app A game-changing peer support platform. Living with cancer can be lonely. Speaking to others who have been there, done that, and worn the unflattering hospital gown makes all the difference. That’s what the Alike app is for. It's a place to share, connect, vent or show off (if that's your thing). Whatever you need to do, whenever you need to do it, we're here." https://alike.org.uk/

"A Piros Orr Bohócdoktorok Alapítvány küldetése, hogy bohócdoktoraival humort és nevetést vigyen az arra rászorulók életébe. A bohócdoktori tevékenységet Magyarországon a Piros Orr Bohócdoktorok Alapítvány honosította meg, melyet 1996-ban alapított az osztrák Rote Nasen szervezet. Alapítványunk missziója, hogy mentális támogatást nyújtson az arra rászorulóknak.. Színészi és pszichológiai háttértudással rendelkező, speciálisan képzett bohócdoktoraink országszerte 16 kórház gyermekosztályait látogatják heti rendszerességgel, emellett speciális programokkal jelen vagyunk idősotthonokban, a Pető Intézetben, valamint halmozottan sérült gyerekekkel foglalkozó intézményekben. Közhasznú minősítéssel rendelkező alapítványunk az elmúlt több mint negyedszázad során közel 500 ezer beteg gyermekhez, illetve több ezer idős emberhez vitte el a nevetés gyógyító erejét Egy jóízű nevetés könnyebbé teszi a hétköznapokat, de még nagyobb szükségünk van rá a nehéz helyzetekben. Kutatások bizonyítják, hogy a nevetés, a jókedv hozzájárul a betegek felépüléséhez, regenerációjához, de természetesen segít abban is, hogy a betegségben, kórházban töltött idő kevésbé legyen megterhelő." https://www.pirosorr.hu/rolunk/misszionk/

"Östergötlands sjukhusclowner är ett mycket välkommet avbrott i den sterila och för många barn skrämmande sjukhusmiljön. Clownerna besöker barnavdelningarna på sjukhusen i Östergötland, men det stannar inte där. Sjukhusclowner finns inte bara på sjukhuset. Clownerna kan också göra hembesök hos familjer med svårt sjuka barn. Detta gör att det alltid finns plats för en paus och bus. Familjerna som träffar våra sjukhusclowner beskriver att de tillför energi i deras vardag som annars kan vara präglad av sjukdom, behandling, smärta och bekymmer – ”paus” för att skratta och lägga undan den arbetsamma vardagen. Idag är clownerna närvarande på länets större barnavdelningar ca 1 gång per vecka men behovet och efterfrågan på clownbesök på kliniker och i hemmen är väsentligen större. " https://www.ostergotlandssjukhusclowner.se/

"According to the World Health Organisation a spinal cord injury (SCI) is one of the most devastating and life changing injuries that a person can sustain. Founded in 1994, Spinal Injuries Ireland (SII) is a registered charity that actively supports people who sustain a spinal cord injury and the family and friends who love them. As the only support and service agency in Ireland of its kind, we provide a person centred service to assist people to engage fully in society. Our mission is to engage with people with a spinal cord injury, along with their family members. Together, we address barriers to full participation in society and empower our service users to work towards achieving personal, social and vocational goals." https://spinalinjuries.ie/about-us/

"Kids-Can Cancer Foundation aims to improve the lifestyle and living conditions of little warriors." https://www.facebook.com/kidscanfoundation/

"Somos una organización colombiana sin ánimo de lucro, que durante 36 años se ha dedicado a acompañar a los niños, niñas y adolescentes con cáncer y a sus familias en el diagnóstico y cuidado integral de la enfermedad, en los aspectos médicos, psicológicos, y sociales." https://www.facebook.com/SanarCancer/about_details

"Cancer doesn’t care about these children or their families. Child Cancer Foundation does. Child Cancer Foundation is a New Zealand charity that provides support to children and families on their cancer journey. We support them every step of the way, helping them overcome challenges and maintain control of their lives. We focus on the whānau, not the cancer. No two families’ experiences are the same, and neither is the nature of the support they need. One thing is always the same: we support every family so they can concentrate on the most important thing of all, loving and caring for their child." https://childcancer.org.nz/who-are-we/our-purpose/

"Make-A-Wish® gelooft in de helende kracht van wensen. Daarom vervullen wij de hartenwens van kinderen tussen 3 en 18 jaar met een levensbedreigende medische aandoening om zo hen kracht te geven de strijd tegen de ziekte verder te zetten. Want als een kind kan geloven dat zijn wens uitkomt, dan kan het ook geloven dat hij beter wordt." https://www.makeawish.be/over-make-a-wish/

" Right now, around 63,000 children in the UK are eligible for a wish because they have a life-limiting or life-threatening condition. From the moment they are diagnosed, the simple pleasures of childhood and family life are replaced by worry, disruption, medical appointments, financial worries and isolation. Make-A-Wish exists to put those issues to one side by empowering a child with the chance to choose a wish that's unique to them, when so much else has been decided for them because of their health needs. In doing so, a wish creates hope, happiness and memories for the whole family to cherish." https://www.make-a-wish.org.uk/about-us/what-we-do/

"LÖSEV' i kurmaktaki amacımız lösemili ve kan hastası çocukların, sağlık ve eğitim başta olmak üzere her türlü ihtiyaçlarının sağlanmasına yardımcı olmak, bunun yanı sıra, kalıtsal ve edinsel kan hastalıkları konusunda ulusal düzeyde tedavi, eğitim ve araştırma kurumları kurmak ve işletmektir. Türkiye'de her yıl 2000 yeni lösemili çocuk vakası ortaya çıkıyor. Bu durum bazen dar bütçeli ailelerde ebeveyni lösemili çocuk ile diğer çocukları arasında seçim yapmaya kadar zorluyor. Bu sebeple vakfımız gerçekleştirdiği tüm faaliyetlerde, gelir elde etmenin yanı sıra, lösemi hastalığını tanıtmayı, lösemili çocukların ve ailelerinin sıkıntılarını topluma aktarmayı ve bu vesileyle toplumu bilinçlendirmeyi amaçlamaktadır." https://www.losev.org.tr/v6/sayfa/amacimiz-3

"Die Clownsbesuche haben einen wichtigen Einfluss auf das psychosoziale Wohlbefinden und den Genesungsprozess der Kinder. Durch Besuche am Krankenbett werden die Kinder befähigt, zu ihrer natürlichen Verspieltheit zurückzukehren und ihnen den dringend benötigten Impuls für Selbstvertrauen und Mut zu geben. Im Format Intensives Lächeln werden Clowns immer mehr in die Behandlungen und Therapien junger Patienten integriert. Ihre Anwesenheit inspiriert eine ruhige Atmosphäre, die Angst oder Furcht abbaut und den Fokus vom medizinischen Eingriff ablenkt. Der Fokus auf pädiatrischen Langzeitpatienten liegt überwiegend auf ihrer Erkrankung, die sich negativ auf ihr Selbstvertrauen auswirkt und Gefühle der Unzulänglichkeit und Depression hervorrufen kann. Alle Kinder, die am "Circus Patientus" teilnehmen, werden gestärkt und bringen die Leichtigkeit der Kindheit und die Leichtigkeit des freudigen Spiels zurück." https://www.rednoses.org/what-we-do/in-the-field/